I’m pleased to share with you information about the Frontotemporal Dementia Disorders Registry (https://ftdregistry.org), a non-profit established by The Association for Frontotemporal Degeneration (AFTD) and The Bluefield Project to Cure Frontotemporal Dementia.
The FTD Disorders Registry is an active resource for anyone seeking to learn more about research and FTD. New Zealanders can join the Contact Registry, meaning they would receive informational updates about FTD and the Registry, including news and general research updates. The Contact Registry is open to international enrolment for persons 18 years old or older. It would be great to get more New Zealanders involved in the FTD Disorders Registry, so I would appreciate you sharing this information with your networks.
Also, yesterday was the premiere of the Global Conversation on FTD. To cap off World FTD Awareness Week, the AFTD worked with the international coalition World FTD United to put together a community-driven video presentation featuring FTD stories from around the world, and perspectives and guidance from researchers and health professionals. Watch the Global Conversation on FTD.